I'm overdue for a post.
We still have yet to hear the results from Rainbow Babies Evaluation. They did contact me to say that it could be an extra couple of weeks, because they want to run extra tests on the sample. And, they scheduled a follow up appointment, its actually tomorrow.
I am hoping when we go they will have answers for us.
The past few weeks Alexis has had many new breakouts. She now has a new batch of lesions on her back, as well as three on her face. These are two places she never really had had them before.
She also had been ill this past weekend. Anytime she gets sick (diarrhea and vomiting) I get nervous. I'm sure its just a bug, or something she ate. But, I cant help but think that it may be an affect of the histio. Now that I know this crazy disease exists, it consumes my mind way more than I should allow it to. But, this is my daughter, my beautiful precious daughter. And, anything that can put her happiness and health in jeopardy is my concern. That's a mommy's job.
So, here I sit typing. I'm a crazy, worried mama. I want tomorrow to come so that hopefully we get answers and direction. But, I dread it all in the same.
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