CIRCLES

On the way to Rainbow Babies this morning my mind was going in circles. Would we get the results back? Would they be the same that Childrens diagnosed? Maybe something not as bad, maybe something worse. Either way I was ready to heat whatever it may be.

But, we have no answers. Dr Tamburro explained that the pathologist wanted to do more slides on Lexie's skin block, but that he needed more skin to work with. And, being that she has a fresh break out right now, it was the prime time for another biopsy. 

I did not want to put her through another one, but histiocytosis is such a rare, crazy, disorder and Rainbow Babies wants to be completely sure that's what we are dealing with. And, so do we.

It would be one thing if these lesions were cosmetic, but its not an issue of that at all. Its an issue of a two year old girl that scratches her skin raw and waits patiently as I inspect her skin on a twice daily basis looking for new lesions to apply cream to. Sometimes she wakes up and I find blood on her blanket from where she has scratched herself bloody.

We are putting our trust in Rainbow Babies. Some may judge that we should not have put her through a second biopsy, but truth is we'd rather be completely sure of what she has so that we can give her the most appropriate treatment. And, if it is in fact histio, it can affect her organs. And, that's not something we can afford to be in the dark about.

So, right now we are going in circles. But, I'd rather be going in circles than in the wrong direction.

Gotta go snuggle by baby,who in case you are wondering, seems to feel fine after her biopsy. She complained a little about the pain, but Childrens Tylenol works wonders! And, mommy's hugs work even better!