STILL WAITING

We have not heard the results of the second analysis on the biopsy yet. It will be three weeks on Tuesday since our appointment.
The first couple of weeks went fast. Logan started Kindergarten, and between school and flag football we have been busy and focused on other things besides this crazy histio.

I called the office yesterday and had to leave a message. They said it would be two to three weeks, and I am growing impatient.

She developed a new "lesion" on her chin. This has been the first one on/near her face. And, this morning she woke up with several on her arms and legs. Dr Tamburro said that they shouldn't hurt or itch. But, Lexie scratches them until they bleed. They almost look like pimples or really bad mosquito bites. And, being that it is mosquito season its sometimes hard to differentiate. But, I was at my cousins high school football game last night with Logan, and Adam assured me she was inside last night away from mosquitoes. Which, makes me believe these new "lesions" are from her histio.

And, I'm not sure if its just me, but it seems when she gets more lesions her mood changes. She has been pretty hard to deal with today. She has done nothing but fight with Logan and be destructive since she woke up. She whines and throws herself on the floor for no reason at all. I'm not sure if its just the "terrible twos" but it seems like there is a pattern. And, if I was covered in bumps that seem to itch and hurt, I'd be whiny and mean too.

I wish we would just get the results already! I feel like Children's Hospital is a well known hospital, and I trust their diagnosis. But, I also feel like this is a crazy, scary disorder and a second opinion was a good idea. We just need answers! Either way, whatever the final diagnosis my little girl seems to suffer from this icky disease, disorder, whatever you want to call it. And, enough is enough.